How We Can Help
It can be challenging if you, or someone you care for, has Cardiomyopathy. Information about Cardiomyopathy is not so readily available and the opportunity to speak to others with similar experiences is rare. CMAA aims to provide people impacted by Cardiomyopathy with support, information, and advocacy.
Support
- A support network of other people with Cardiomyopathy and their families and friends
- A contact person who can provide initial information and support
- A Facebook closed group for sharing experiences and seeking information
- Periodic social and information meetings
Information
- The website is updated regularly
- Newsletters are produced regularly (placed on our website and sent to our database)
- Relevant information is shared on our public Facebook page
Advocacy
- Submissions are regularly made to government enquiries, and relevant Government committees such as the Pharmaceutical Benefits Advisory Committee, Medical Services Advisory Committee
- Committee members perform numerous advocacy activities including attending conferences, sitting on round tables and steering committees, and undertaking consumer engagement activities within health services to ensure cardiomyopathy patients are represented
