CARDIOMYOPATHY AUSTRALIA

National Genetic Heart Disease Registry

The NGHD Registry aims to enrol every family in Australia with an inherited cardiomyopathy (e.g. hypertrophic cardiomyopathy) and inherited electrical disorders (e.g. long QT syndrome). The website includes information sheets on each of the diseases, details and genetic testing availability and links to new research programs.

Our Community - CMAA Donations page

ourcommunity.com.au strengthens Australia's 700,000 community, education and non-profit groups by providing funding advice, a free on-line donations & volunteers service and practical information.

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National Heart Foundation - Australia

The NHF is an independent Australia-wide, non-profit health organisation, funded almost entirely by donations. The Foundation's purpose is to improve the heart health of Australias and to reduce disability and death from heart and blood vessel disease.

Heart Support Australia

A national, volunteer, not-for-profit support organisation providing support, information and encouragement for people with a heart condition and their families

Australian Cardiac Rehabilitation Association

The ACRA is a national association of multidisiplinary health professionals involved in cardiac rehabilitation and the prevention of cardiac disease.

Heartkids Australia

This group was formed in 1990 by a group of parents who have children with heart problems. The group offers non-medical support and understanding to other families who have had a child diagnosed with a congenital or acquired heart defect.

Cardiac Society of Australia and New Zealand

Society for cardiologists registered in Australia and New Zealand

Centenary Institute

The Agnes Ginges Centre for Molecular Cardiology at the Centenary Institute, Sydney, carries out important research on genetic heart disease with particular focus on gene discovery in familial cardiomyopathies and sudden cardiac death.

The Victor Chang Cardiac Research Institute

Founded in 1994 The Victor Chang Cardiac Research Institute is an independent, not-for-profit research facility, dedicated to the memory of cardiac surgeon Dr Victor Chang.

 

North Shore Heart Research Foundation

North Shore Heart Research Foundation is a non-profit public benevolent institution. It does not receive any government funding and is entirely dependent upon the generosity of the community through donations, bequests, telemarketing, lotteries and funding from philanthropic Trusts and Foundations.

Its mission is "to decrease the impact of heart disease on community health by financially supporting research programs into the prevention and treatment of cardiovascular disease".

Royal Childrens Hospital - Cardiology Dept

The Cardiology Department at the Royal Childrens Hospital provides a diagnostic and treatment service for patients referred with actual or suspected heart disease.

Heart Research Centre

The primary focus of the Heart Research Centre's work is to undertake behavioural, psychological and social research. Findings are used to guyide the development and testing of methods to improve the quality of life of patients, families and communities and to encourage healthy behaviours, which should reduce premature disability and death from cardiovascula disease.

Cardiomyopathy Association - UK

The Cardiomyopathy Association is a registered charity which exists to help sufferers and medical professionals find ways to deal with a condition which, when identified, can be monitored and, if required, treated with medication

Hypertrophic Cardiomyopathy Association - USA

This US Association was established in 1996 as a support organization focused at providing information and support to those with Hypertrophic Cardiomyopathy, their familites and the medical community. This site has a very useful message board, where you can communicate with many other people with HCM worldwide

Cardiac Inherited Disease Group

CIDG is a New Zealand National multidisplinary group that aims to reduce sudden cardiac death through recognition, education and research into cardiac inherited disease

 

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