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Cardiomyopathy Association - UK
The Cardiomyopathy Association
is a registered charity which exists to help sufferers and medical
professionals find ways to deal with a condition which, when identified,
can be monitored and, if required, treated with medication.
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Hypertrophic Cardiomyopathy
Association - USA
This USA
association was established in 1996 as a support organization focused at
providing information and support to those with Hypertrophic
Cardiomyopathy, their families and the medical community.
This site has a very useful
message board, where you can communicate with many other people with HCM
worldwide.
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Cardiac
Inherited Diseases Group
CIDG aims to reduce sudden
cardiac death through recognition, education and research into cardiac
inherited disease.
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Heartkids Victoria Inc.
This group was formed in 1990
by a group of parents who have children with heart problems. The group
offers non-medical support and understanding to other families who have had
a child diagnosed with a congenital or acquired heart defect. There are
Heartkids groups in other states of Australia.
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Centenary Institute
The Agnes Ginges Centre for Molecular Cardiology at the Centenary
Institute, Sydney, carries out important research on genetic heart
disease with a particular focus on gene discovery in familial
cardiomyopathies and sudden cardiac death.
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National Genetic Heart Disease Registry
The National Genetic Heart Disease Registry aims to enrol every family in Australia with an inherited cardiomyopathy (e.g. hypertrophic cardiomyopathy) and inherited electrical disorders (e.g. long QT syndrome). The website includes information sheets on each of the diseases, details about genetic testing availability and links to new research programs.
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Cardiac Society of Australia and New
Zealand
Society for cardiologists
registered in Australia
and New Zealand.
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Heart Support Australia
A national, volunteer,
not-for-profit support organisation providing support, information and
encouragement for people with a heart condition and their families.
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National Heart Foundation -
Australia
The Heart Foundation is an
independent Australia-wide, non-profit health organisation, funded almost
entirely by donations. The Foundation's purpose is to improve the heart
health of Australians and to reduce disability and death from heart and
blood vessel disease.
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The Victor Chang Cardiac
Research Institute
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North
Shore Heart Research Foundation
North Shore Heart Research
Foundation is a non-profit public benevolent institution. It does not
receive any government funding and is entirely dependent upon the
generosity of the community through donations, bequests, telemarketing,
lotteries and funding from philanthropic Trusts and Foundations.
Its mission is "to
decrease the impact of heart disease on community health by financially
supporting research programs into the prevention and treatment of
cardiovascular disease".
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Australian Cardiac Rehabilitation
Association
The Australian Cardiac Rehabilitation
Association is a national association of multidisciplinary health
professionals involved in cardiac rehabilitation and the prevention of
cardiac disease.
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Heart Research Centre
The primary focus of the
Heart Research Centre’s work is to undertake behavioural, psychological and
social research. Findings are used to guide the development and testing of
methods to improve the quality of life of patients, families and
communities and to encourage healthy behaviours, which should reduce
premature disability and death from cardiovascular disease.
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Royal
Childrens Hospital - Cardiology Dept.
The Cardiology Department at
the Royal Childrens Hospital
provides a diagnostic and treatment service for patients referred with
actual, or suspected, heart disease.
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The
Children's Cardiomyopathy Foundation
The Children's Cardiomyopathy Foundation (CCF) is a US based,
non-profit organisation focused on pediatric cardiomyopathy. CCF is dedicated
to accelerating the search for cures while improving diagnosis, treatment,
and quality of life for children affected by cardiomyopathy.
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Our Community - CMAA Donations page
ourcommunity.com.au strengthens Australia's 700,000 community,
education and non-profit groups by providing funding advice, a free
online donations & volunteers service and practical information.
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